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SuperDepressed

Tag Archives: autistic spectrum disorder

10th April 2019

10 Wednesday Apr 2019

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aac, asc, augmentative and alternative communication, autism, autistic spectrum condition, autistic spectrum disorder

Today I want to share a blog entry from “non-verbal” autistic teenager Henry, who uses AAC to communicate. I believe he’s no longer a teenager and no longer blogging, now (or not blogging on this platform) but he makes excellent points about the need for AAC.

I wish someone had offered us AAC when my little girl lost all her words. Maybe she wouldn’t have been silent for so long, if we had helped her when she was 18 months old, instead of crying about her speech regression. (Don’t get me wrong–it’s STILL sad to me, when I go days without hearing her beautiful voice–but that’s *my* pain, and as her mother, I have no right to make her aware of, or responsible for, that pain.)

My son started talking when he wanted to (age 3) and despite obvious delays and the heavy use of scripted language (which sometimes requires an interpreter, for lack of a better word) I’m not sure he’d have ever used AAC. But–I wish we had known that was an option, I wish we could’ve made him aware that it was an option, and then, the choice would have been his, not society’s.

But don’t take my word for how necessary AAC is. Take Henry’s:

https://rosesareredforautism.wordpress.com/

4th April 2019

04 Thursday Apr 2019

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autism, autism awareness, autistic spectrum condition, autistic spectrum disorder, ido in autismland, ido kedar

I’ve decided the way I’m going to approach this month is to alternate between negative and positive posts.

Today’s post is about Ido Kedar. He’s a young adult, I believe (20ish?) who spent the first half of his life classed as non-verbal. Because he couldn’t speak with his mouth and had motor difficulties which made it hard for him to type, use sign language, etc, “professionals” assumed Ido was much less capable than he actually is.

The post below is from his blog, and features a link to a podcast about the ways researchers are now trying to explore the experiences of so-called “low-functioning” or “non-verbal” autistic people. Ido participates by using Augmentative and Alternative Communication (AAC).

This is just one of the many reasons we should always presume competence/understanding/the ability to make choices, even in young children or people who struggle to communicate in more typical ways.

http://idoinautismland.com/?p=808

Memories, September 2018, 1

11 Tuesday Sep 2018

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"nice guys", abuse, asd, autism, autistic spectrum disorder, Domestic violence, intimate partner violence, relationships, sexual assault, social cues, toxic relationships

He poked me in the face, that first day. D___ had chuckled at something he had said, and I caught D___’s eye and smiled a little, trying to walk a balance between them, and he poked me–4 or 5 times, just under each eye, not quite hard enough to bruise–and I “slapped” his face (not hard enough to leave any mark, never mind a bruise) and told him that if he ever did it again, we were over.

There was the time we were having a good-natured, playful argument, and he picked up a pizza and “playfully” rubbed it into my face. I stood up, walked silently to the shower, and didn’t speak for several minutes. It was in jest, and he hadn’t struck me; it didn’t count, did it?

The times (plural) he followed me from room to room, shouting at me, and when I refused to engage, he loomed over me, using his extra 9 inches of height and exponentially stronger voice to full advantage. One time, he even admitted he was trying to goad me into hitting him.

The same in the car, the raving at me for anything and everything, too many times. Shouting at me for not being a better navigator, until I was sobbing in helpless fury, while he was driving us somewhere. Handing me his phone despite my protests that I can’t read maps–he never offered to show me how, because he’s rubbish at reading them as well, but his vanity won’t let him admit it–and then snatching it back, shouting, “Don’t touch anything!” when I tried to zoom in, to read the street signs.

The car again, ignoring first my pleas to let me out, and later, my warning that if he didn’t either let me out or stop screaming at me, I’d hit him. Eventually I did–the same way I did it the first time, when he poked me, not leaving any signs I had touched him–and he blacked my eye. It was swollen nearly shut for a week, and purple and green for 2 weeks on top of that.

I won’t talk about the time we “had sex” that I mostly don’t remember, when I’d had 100 mg of Sertraline, 300 mg of tramadol hydrochloride plus paracetamol and ibuprofen in the 12 hours before going out, and 4 glasses of red wine in 4 hours, but he was perfectly sober… I remember coming to underneath him, which is so unlike me–why wasn’t I on top, especially drunk, disinhibited?–but I do remember flirting with him in the other room, even brushing my foot across his (fully clothed) crotch, and asking someone else if I should have sex with him… I must have consented, even propositioned him, after an entire summer of explaining over and over again that I wanted to be friends and turning down his advances, AND already having fought off the unwelcome advances of another friend, who told me he needed a friend to talk to, led me around the corner from the doormen of the club, and forced his teeth and tongue into my mouth while he held me, struggling, against a brick wall.

I’m sure that if I’d wanted to say no–after repeatedly begging these 2 “good friends” of mine (and longer-term, better friends of each other) to just BE MY FRIEND over the course of several months–I would have done.

I think he thinks I miss him, and that’s why I had to stop talking to him. I think there’s some part of him that thinks I’m not over him… that might be true enough, but not in the way he thinks.

The only thing I’m not over, is how I could have allowed myself to be used, so many times, and still believed all the bullshit he spouted at me. Was I born that naïve, or did I learn it, somehow? All the signs were there, and he wasn’t the first man to work up to blacking my eye, over a period of months/years… I do not know what I will do, if that ever happens to me again.

Sometimes, statistics are true. Some conditions (ASD, in my case) make you so much more vulnerable than you realise, at the time.

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