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Mental Health Update, August 2018, 5

27 Monday Aug 2018

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anxiety, anxiety and depression, asd, autism, children, depression, parenting, parenting autistic children

Better again, today, overall. The shadow of How I Felt Yesterday And The Day Before and the Day Before That, etc, is humming a sly, mocking tune under its breath, and I will have to stop and listen at some point (I know by now that it will trip me up, if I go too long without acknowledging what it has to say) but for now, I am safe. For now, I can breathe a little, and just take a day or two to feel like “myself”–the myself that is, for the most part, relatively content.

One good thing, I will write One Good Thing: Naomi and Gabriel, the play-acted scene where Spin was arrested. I imagine that makes no sense to anyone who wasn’t there; but I *was* there, and it’s worth a lot of misery and heartache and even some terror, just to hear them playing together.

You see, Amanda? You see. I am willing you to see.

Things always get worse, again–you won’t feel this peaceful forever–but then, they always get better, again.

Did you think, when she was 4 and had lost all her words, and he was 2 and had never so much as babbled “da” or “ma” that they would act out a scene, using full sentences and different voices and laughing with joy at each other’s antics? You didn’t dare hope, and yet, here it is.

It is objectively good, that your children enjoy each other’s company. Even when *you* don’t feel it, even when you’re too lost in your own despairing ruminations and unrelenting terrors to feel anything but pain, their relationship is A Good Thing.

And today, you lucky girl, you *could* feel it.

Mental Health Update, August 2018, 4

26 Sunday Aug 2018

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abject terror, anxiety, anxiety and depression, depression, mental health, mental illness

Better.

Not back to normal–unless we’re taking my “normal” as “moments and even minutes of relative calm, liberally interspersed with minutes and even hours of abject terror” and I hope that’s not my fate–but I *am* better, today.

Oh, ye gods, though. The sick upward spiral of nauseating fear, and the silent scream of despair as you start to come back down. I wish I had the words, just so I could talk myself out of being afraid of the sensation itself.

Still. I went to the mall, today, and it was crowded and awful and I still had fun, in between the moments of really NOT having fun. When the kids returned from their weekend at their dad’s, I kissed my son on the top of his head, and he asked me to tie the drawstring on his shorts which was an easy thing I could do to help him, and he made me laugh, some way or other. It is worth noting that he makes me smile every day, possibly more often than any other person on Earth. My daughter spoke to me (she spoke as her imaginary friend, in not-quite her natural voice) and she was playful and funny; and if I’m tempted to complain about her putting on a persona in order to speak, I should remember that there was a time when we never thought she’d speak at all, and now, she speaks in short sentences, responds to my sentences, and makes jokes. Also, she let me cuddle her, briefly.

My husband has made me laugh at least 3 times, today. I’m the sort of person who laughs dozens of times in a day, when I’m at my best… but 2 weeks ago, I was crying dozens of times in a day, and having panic attacks, besides. Nary a laugh to be seen.

Forward progress is being made, and that’s all we have; the hope that things will be a little better tomorrow, or will stay nice for a little while, when they are nice. I shall be 35, before this year is out. I thought I might not make it that far, at earlier points in my life (not to sound melodramatic, but it’s usually best to be honest) and just the realisation that I have, gives me a little hope and a little peace and a little desire to try a little longer.

Good Lord. Reading back that last sentence, I actually sound worse than I thought I was. The “anxiety,” though… that utter, awful, unrelenting terror of nothing and everything that they call “anxiety”. I do wonder if I’ll lose the battle against it, someday. (Again, I’m just being honest.)

But. But but but. I might lose the battle, but I haven’t today. I know it’s a cliché, but there it is: I am happy I’ve made it through one more day, a little calmer overall, and that’s enough, for now.

Mental Health Update, August 2018, 3

21 Tuesday Aug 2018

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abject terror, anxiety, depression, mental health, mental illness

How can it have only been 4 days since the last entry? It feels like a fortnight, and every second of it stressful.

Waiting for an assessment with the mental health team (not to be confused with the crisis team, who already saw me) and hoping for some long-term support. I’ve been so afraid of being thought of as weird for so long, I’ve avoided getting help and to some extent, let myself get to this state; at times, even been smug about it… I’m trying to get it sorted out now, but dear God, the waiting.

Will it always be like this? Will *this* feeling always be just around the corner?

To put it into perspective, though–it has been years since I’ve felt this terrified, for hours and days on end. It lasted about 3 weeks last time, before settling noticeably… awful as this is, I have to believe that if I can hang on a little longer, this, too, shall pass.

My Christian upbringing is showing, again. Well. There’s nothing wrong with that, as long as you don’t let your upbringing turn you into a dickhole.

Always a risk with me, but I’m trying my best.

Mental Health Update August, 2

17 Friday Aug 2018

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No, I do not understand what I need to do. I am not 100% in the right (much, much less than that) and I am making the Fundamental Attribution Error all over the place.

I think. But I’m too sleep-deprived to function. But I am wrong about how right I was–I think?–and I’m not sure what to do.

Mental Health Update August 2018

13 Monday Aug 2018

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anxiety, anxiety and depression, bullying, cyberbulling, depression, facebook, mental health, mental illness, mood, social anxiety, social media, triggers

Just what it says on the tin.

I was doing so well. Volunteering with a suicide prevention helpline, making tentative plans to see actual people out in the actual world, had a mini-vacation with my husband and kids… now I’m spiralling. Down, not up, but not happy… just anxious.

I got 5 hours of sleep Saturday night, and less than 4 last night, despite being exhausted both nights. The real acid test is this, though: I couldn’t sleep right now, in broad daylight, with another adult in the house, despite being so tired I’ve had a fatigue headache since before going to sleep this morning (it was light outside before I dozed off, despite having been in bed for 5+ hours, at that point). I just can’t switch off enough to rest.

If it makes me feel any better (it does not) I have yet more evidence that social media is the trigger. I joined a large Facebook group about a week ago, and I’ve been more and more cheerful each day–as soon as I got some genuinely negative feedback in the group, eventually getting one of my posts removed (they disliked a pic I shared, despite it being a legitimate reference to the overarching theme of the group) I was ripping at my nails, crying a little bit, starting to hyperventilate, the whole 9 yards. I tried to move on; I engaged in what I thought was going to be a civil discussion on a friend’s FB Wall.

After a few opening comments were made (both by me, and by other people) some random suggested I “find something more productive to do with my time” rather than joining in a discussion between several of my friends, and someone I’ve known for the best part of a decade liked the comment.

The same guy (who has never met me, as far as I know) went on to call me self-righteous, a horrible person, not a real friend of my friend, etc, because….? I genuinely don’t know. I didn’t launch a single ad hominem attack at him, nor at anybody else.

I can’t understand why my “friend” would like me being bullied (that’s what it is, when someone singles just you out, tells you to leave the conversation that’s open to everyone, and then starts hurling abuse at you). I don’t understand what to do about it.

Yes, I do. It’s just hard. Wish me luck.

Writer’s Block

25 Wednesday Jul 2018

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catharsis, getting into the habit, mood diary, mood journal, writer's block, writing alarm

This is what happens when you ignore the urge to write, 2 or 3 days in a row… you come back to your blog and realise it’s been nearly a month since you last added an entry.

I wonder if this is standard, even for professional authors; is the main thing getting in their way, their own inability to stay focused and make time to write?

Whether this is a common problem or just mine, I need to once and for all nip it in the bud. I don’t think I necessarily need to write every day, or when I’ve nothing to say–but when I *do* feel the need for catharsis, I should woman-up and get my not-so-little butt online. I’ve been the North American, overweight, living version of a screaming banshee (bean sidhe, if you want the traditional spelling–my sister did a high school project on Celtic mythology, way back when) for about 3 weeks now… which coincides nicely with the first time I felt the urge to write, and pushed it aside.

It’s not about whether or not I have talent, or whether I’m boring people by writing this blog–that’s utterly irrelevant–the point is, getting this stuff off my chest makes a real (probably measurable) difference to my mood, and my effect on the people around me.

So, for them, I’m going to do it. After approximately 29 years of writing, I’m going to set a daily writing alarm.

Wish me luck!

My Narcissistic Ex

02 Monday Jul 2018

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abuse, anxiety and depression, BPD, controlling, intimate partner violence, intimidation, mental health, mental illness, narcissist, relationship, self-harm

I finally blocked him, not that long ago–my mental health has only improved, in subsequent weeks.

During our final conversation, I told him that he’d had no right to start a relationship with someone who was mentally ill, unless he was willing to make the sacrifices they needed in order to continue improving their mental health.

He argued with me for an hour, I’d guess, accusing me of everything from saying mentally ill folk don’t deserve romance to lying about my motives. The sum total of his words were: “how dare you not accept the crumbs of my attention I’m willing to give you, the weeks or months of not talking, and then not be thrilled to hear from me when I finally deign to reply to your message or send one of my own–my girlfriend is mentally ill, and her needs come first.”

Throughout the entire conversation, he kept making references like the above, which let me know: he thought I was talking about when he began his relationship with his current girlfriend, who has Borderline Personality Disorder.

He never once understood that my words were an indictment against the years he spent deceiving me, lying to my face, and pretending that I “deserved” to be treated that way (abused, in a word) because he didn’t agree with the morality of some of my life choices.

I wasn’t talking about her, you pure-blind narcissistic idiot–the person you’re looking at is not necessarily the person at the top of everyone else’s thoughts.

I was talking about me: about the suicidal ideation that you were bored of hearing about (in pretty much those words: bored, tired of, doesn’t make an impact anymore….) the self-harm that I tried to hide from you (yet you *still* shouted at me for doing it, after following me into the bathroom to watch me shower) and most of all, the insistence that it wasn’t abuse to scream obscenities at me, call me ugly names, shove/restrain/throw things at/hit me, or coerce me into sex when I was so obviously stiff and scared and not in the mood.

I’m sorry for her, because she’s not equipped to deal with you, and you’ll take advantage, because that’s what you do… but, as ever, until I finally gave up the fight, I wanted you to just once acknowledge how you treated *me*.

Robert Wright…

30 Saturday Jun 2018

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agnosticism, atheism, best talk on YouTube, depression, nonzero sum game, optimism, progress, robert wright, worldview

…is my go-to, out of a large-ish group of current intellectuals who debate everything from the implications of particle physics, to whether or not religion is good, bad, or indifferent, to the trajectory of society in general.

I’m currently reading his book (shortlisted for a Pulitzer–fancy!) “The Evolution of God,” and I watch one of his talks more or less daily. To date, this is still my favourite Robert Wright talk, not least of all because it covers a subject I enjoyed learning about during my psychology degree… maybe more important to me personally, I think reminders of ways we can work towards a better world are darn useful, when my depression is bad.

Robert Wright’s “NonZero Sum Game Talk”

It’s 20 minutes of your life you’ll be glad you spared–he’s clever, amusing, not bad-looking, and because he himself is not wildly optimistic by nature, his optimism feels more accessible to someone like me.

I hope it’s accessible to someone like you, as well.

“O Robin, Our Robin”

29 Friday Jun 2018

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grief, love, mental health, mental illness, poem, poetry, remembrance, robin williams, suidice

This is imported from one of my other blogs; my sister commented today that although I’ve seemed alright “for a minute” (meaning: months, but this kind of figurative language is always hard for me) she always keeps me in mind, when she sees posts about suicidal ideation etc.

I wrote this a couple of years ago, now, for the then-only-just-deceased Robin Williams… I wanted to fix it, to make it better for the anniversary of his death, but it’s been a busy year and this is what I’ve got. I’d rather post it than not, though.

This is *not* “O Captain, My Captain,” nor even a decent parody (the rhyme scheme ran away with itself, and I was powerless to stop it; there are too many syllables at many points, and at least one extra stanza) but it most certainly *is* an homage to that poem, to Walt Whitman, to the movie “Dead Poets Society” and, most of all, to Robin Williams, the… oh, fuck it. He was a legend, and I don’t have the words, but here’s my best attempt.
If you’re somewhere reading it, Robin, I hope you’re touched by my efforts. You were such a generous human being, I know you won’t judge me for the many stylistic errors.

“O Robin, Our Robin”

O Captain, my Captain–
You jumped the fucking ship?
You’re overboard, we’re over-bored
Without your perfect quips.

Don’t get me wrong, the voyage long was more than you could bear
I get the why, it’s just that I
can’t stop my useless tears.

And oh fuck! Wank! Shit!
Oh the movies never made!
Oh the vast routines where genius gleams
now stuck in endless shade!

O Captain, my Captain, how have we lost your spark,
When o’er the world your jokes unfurl
to chase away the dark?

Oh Captain, our brother,
We’d share with you our pills
Our memories bright of how your light
has lessened all our ills.

Although he does not answer,
Although his family weeps,
I think I’m right, this is just night
And he’s merely fast asleep.

His lamp unrubbed, his lines un-flubbed
To Orson he does not fly;
In a jungle great he merely waits for an 8, perhaps a 5.

Posting More; My Son, 1

15 Tuesday May 2018

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asd, autism, autism parenting, autistic boys and girls, children, echolalia, family, language delay, parenting, selective mutism, speech and language

It looks as if I’m posting a bit more, these days; I can live with that. The day will come when I actually finish one of my half-completed/barely-started novels, and I’ll want to have an audience standing by *wink, but I’m semi-serious*

I thought I’d talk about my son, today; I can hear him in the other room, shouting excitedly and unreservedly about what’s happening on the Wii, rarely making the clearest, most linear sense, but always manufacturing joy as if it’s a thing that can be bottled; and he’s so loud and so animated that, if he keeps it up too long, the neighbours will likely bang on the wall.

I don’t care, to be honest…. the kids have lived in this house their entire lives, not counting weekends at their dad’s, and none of my neighbours has once asked me if I needed help raising 2 autistic kids (including during the period after I asked their dad to leave, and I was juggling a 10-month-old and almost-3-year-old with severe autism by myself, 5-6 days a week, on 3-4 hours of sleep a night…) bang on the walls, you small-minded, compassionless wretches.

Despite living next door and sharing a wall with us (terraced housing) you weren’t there, when my babies were actual babies, were you? You don’t remember a thing from when my 2 were tiny, and it was all I could do to keep them happy and healthy and safe. But *I* still remember that my Gabriel didn’t make a single purposeful sound (no babbling, no nothing, other than laughing or crying) until he was 3-years-old, and that his first “word” was, “1, 2, 3.” In a week, Gabriel could count to 10 and read the numbers. A week after that, he said, “Issa a dack. Wah wah wah.”

When he spoke for the first time, we thought it was a genuine miracle, befitting a child with an angel’s name… after all, by then, his sister (aged 5, at the time) had stopped speaking altogether; to this day, I believe it was only his determination to interact with her, that got her to begin trying to speak, again. (Nearly 12 now, she’s still functionally non-verbal, and far, far behind even her peers with complex needs, when it comes to spoken language–without my son’s encouragement, I very much doubt if she would speak at all. She didn’t, for the best part of 2 years, age 3 to age 5.)

That’s Gabriel, though. Whatever my feelings about the almost ludicrously fundamentalist way I was raised, the idea that I was right to name him after an angel persists. Even now, almost 10 years old, he is made of weather that’s mostly sunshine, full of bounce and energy and enthusiasm, and even when his skies are stormy, all he wants is to feel better, to be helped, to be better himself.

For my daughter, he can get her to smile and play when no one else can. I didn’t mean to have him be her caretaker; but it’s a role he seems happy to fulfil, and she reciprocates in the ways that she can. *She* might get cross with him, but woe betide anyone who tries to hurt her little brother… she finds her voice then, if the words still elude her.

For me, he’s everything that made parenting a little lighter. She was every profound and worthy and solemn feeling I’d ever had, rolled into one; he was no less deeply loved, but those same feelings were lit from within, by the light he generates simply by being himself. Between the pair of them, my light and my shade, my extrovert and my introvert, my morning sun and my evening star, they have taught me how to be a mother.

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